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Get information and advice hereCheck out all our upcoming events...Unity Walk 2014Check out all the fundraising going on for ParkinsonsMembership 2014

 

Latest News

"DBS Presentation to the Oireachtas Joint Committee on Health and Children November 2014"

   http://www.oireachtas.ie/viewdoc.asp?DocID=27602&&CatID=127

 

MY PD JOIURNEY

Are you interested in completing a survey on a piece of research being carried out by the European Parkinson’s Disease Association?

To help us develop a comprehensive picture of how Parkinson’s is currently diagnosed and managed across Europe and also to understand the situation from the perspective of people with Parkinson's, their carers and health professionals. “

The survey takes approximately 20 minutes to complete and all responses will be confidential. 

https://www.surveymonkey.com/s/UKIrelandPD

 

 

Press Release - 

Statement from The Parkinson’s Association of Ireland

about Robin Williams’ early stage Parkinson’s

 

Robin Williams’ wife Susan Schneider has said that he was in the early stages of Parkinson’s Disease at the time of his death. 

Parkinson’s Disease has many symptoms, one of which, sadly, is depression; although it would appear that Robin Williams had a bigger longer-term issue with depression, that pre-dated any Parkinson's diagnosis.

Whilst there has been no statement linking Mr Williams’ death to his diagnosis of Parkinson’s, we appreciate the honesty of Susan Schneider in speaking out about the condition.

With over 9,000 people in Ireland living with Parkinson’s, it is important that we get the message out there that help is available.  The Parkinson’s Association of Ireland has a range of services it provides countrywide, which includes information on the various aspects of Parkinson’s disease, a helpline, and nurse call back service. 

It is important to note that many people live full and active lives with Parkinson’s, but, for some, it is life changing and can be a major worry, for both the patients and their careers.  

Anyone who is worried about their condition can avail of the services of the PAI, and be put in touch with local affiliates of the charity group. 

For more information visit the website www.parkinsons.ie or call 1800 359 359

 

About Parkinson’s Disease

A progressive neurological disorder, which, so far, cannot be cured, the symptoms of Parkinson's, largely dexterity problems, can be effectively controlled with medication for many years. 

Each year hundreds of people in Ireland are diagnosed with Parkinson’s disease, and approximately 9,000 people are currently living with Parkinson's in Ireland.  More young people are now being diagnosed, with symptoms presenting as early as in the thirties and forties.  5% of Parkinson’s patients are under 40.

Tremor, or shaking, often in a hand, arm, or leg; stiff and aching muscles; poor balance and slow, limited movement are the classic symptoms of Parkinson’s disease, which typically begin appearing between the ages of 50 and 60.  They develop slowly and can go unnoticed by family and friends, and even the person who has them.

The Parkinson’s Association of Ireland aims to help people with Parkinson's, their families and carers, and health professionals, by offering support and information on any aspect of living with Parkinson's.  The Association also initiates and funds research into Parkinson's disease, and its causes and effects.

 

MEDICAL CARDS

We have had a number of calls about people losing their medical cards. Our advice is to appeal the decision - you can read about how to go about that HERE.

Then you should ensure that the person with Parkinson's has a Long Term Illness (LTI) book. They are entitled to have this regardless of Medical Card status. This books allows all medication used for  treating the various aspects of PD to be dispensed for free. Read about the LTI scheme HERE


New information leaflets

We have added some new information leaflets to our collection, including Pain, Impulsive-Compulsive Behaviours, Dry Mouth and Reflexology. You can view them HERE or call us on 1800 359 359 and we will post some out to you.

 

Membership

If you would like to join or renew your membership, you can download the forms here. to RENEW, click HERE, and to JOIN click HERE. If you are a member of a branch, please forward your completed form directly to your branch. To get all the branch details, click HERE, or if you want to be a general member, and receive only magazines, please send your form to the main office in Dublin.

100% funded by charitable donations and sponsorship

Did you know that we are totally reliant on charitable donations, membership and corportate sponsorship? We receive no government funding, and don't have any charity partners. We, like many other charities, are finding these economic times difficult while we strive to continue to offer free information and advice to people newly diagnosed with Parkinson's, as well as those living with Parkinson's, their families, carers and friends.
If you would like to make any donation, would like to organise or participate in a fundraising event, please contact us on 01-8722234 or contact our Fundraising team by email at fundraising@parkinsons.ie

 

Have you got a story to contribute to the PAI magazine? We want to hear from you!

We are looking for some stories, your experiences and your tales for our magazine. We are looking for articles and stories about things you have done, things you have experienced, good and bad, and all submissions will be considered. Hopefully this will be a regular feature going forward, as our feedback on the magazine says that people with Parkinson's want to hear about other people with Parkinson's.
If you have something you would like considered, please email it to info@parkinsons.ie or post it to us - Parkinson's Assoc of Ireland, Carmichael House, Nth Brunswick St, Dub 7.


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Parkinson's Newsletter

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Fri, 19 Dec 2014 00:00:00 GMT

After already being nominated for a Grierson award, one of the...

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Thu, 18 Dec 2014 00:00:00 PST

Researchers in Montreal led by Jacques Drouin, D.Sc., uncovered...

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Wed, 17 Dec 2014 01:00:00 PST

Scientists at Brunel University London have found a way of targeting...

Source: Parkinson's Disease News From Medical News Today

Wed, 17 Dec 2014 07:00:00 PST

A new study supports findings from previous research that meth...

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Tue, 16 Dec 2014 01:00:00 PST

Signs of cognitive decline related to aging populations, and...

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Mon, 15 Dec 2014 00:00:00 GMT

Company formed to Discover Disease Modifying Therapies for Alzheimer's...

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Mon, 15 Dec 2014 00:00:00 GMT

The Bakken Award recognizes outstanding individuals who, with...

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Sun, 14 Dec 2014 00:00:00 PST

Yeast cells can sometimes reverse the protein misfolding and...

Source: Parkinson's Disease News From Medical News Today

Fri, 12 Dec 2014 03:00:00 PST

A new study finds that people with Parkinson's disease have...

Source: Parkinson's Disease News From Medical News Today

Fri, 12 Dec 2014 01:00:00 PST

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Source: Parkinson's Disease News From Medical News Today

Thu, 11 Dec 2014 00:00:00 GMT

Parkinson's disease sufferers have a different microbiota in...

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Thu, 11 Dec 2014 00:00:00 GMT

The pace of change in health is breathtaking, Tapani Piha, of...

Source: Parkinson's disease and movement disorders news

Wed, 10 Dec 2014 02:00:00 PST

A novel Parkinson's vaccine will now be tested in a clinical...

Source: Parkinson's Disease News From Medical News Today

Wed, 10 Dec 2014 00:00:00 GMT

Acorda Therapeutics, Inc. (Nasdaq:ACOR) today announced that...

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Tue, 09 Dec 2014 00:00:00 GMT

A novel Parkinson's vaccine will now be tested in a clinical...

Source: Parkinson's disease and movement disorders news

Mon, 08 Dec 2014 00:00:00 GMT

Data from an analysis of Phase III studies in patients with PDP...

Source: Parkinson's disease and movement disorders news

Green Your GoodsHave you got gadgets like mobile phones i-pods, laptops, stuck in drawers or cupboards? Why not convert them into cash for the Parkinson's Association of Ireland. Click on this link to bring you to our GYG web page and follow the three easy steps to make a real difference from unwanted gadgets.